I too have FM, Mine is even more rare because it is not caused by histoplasmosis, they don't know how I contacted mine. I live in Canada though. And FM is not recognized here, and there is really no information or long studies done. Doctors need to have the funds to research this rare disease. My doctor is talking to doctors in the U.S, to see if they can help me!
My husband, David Martin, was diagnosed with fibrosing mediastinitis in 1995 at the age of 26. Little is still known to this date and treatment options are minimal. More needs to be learned so that people like my husband can get help and live a better life. Right now the only thing that is done is rounds of prednisone when the congestion gets heavy. And we all know what prednisone does to your body. Thanks and God Bless!!
great work Gina- keep up the fight and know that there is support for you in your community! Be strong and take good care-Out best thoughts, well wishes, prayers and hope are there for you and your family!
I am a histopathologist/cytopath ologist who would very much like Gina win her battle against FM. I also salute her noble endeavour to raise awareness amongst the general population about rare diseases.At times I wonder how fragile we are as living beings and how vulnerable we are to diseases. Wish her all the best in her effort to win over FM.
have had 1/4 of one lung removed due to hystoplasmosis - which is well known in the midwest (Missouri)
had never heard of this disease, but will try to help get the information out
I have been batteling FM for 3 years now and it is not something to joke about! It can cause alot more problems with more than just your lungs and others need to realise just what FM is!
