J'ai aussi eu enantone et décapeptyl et je souffre encore énormément d'effets secondaires. Les médecins donnent ces médicaments trop facilement et sans aucun suivi. C'est une honte.
I support this petition. I had the shots in 2000 and again in 2005...got treated for endo.. the side effects were worse than this disease. My life has been turned upside down after taking this drug, and I can't say just how full of regret I am.
This drug had and continues to have serious side effects on me. I stopped using it a year and a half ago and am still not who I was before the drug. I wish I could relive the day I made the decision to move forward with this drug. Looking back my symptoms would have been far more better than what I live with now on a daily basis.
I support this petition.
My gynae wants to put me on one of these GnRH drugs and I have very severe fibromyalgia already and typical menopausal symptoms ever since a v.lower stomach injury, said likely need hysterectomy anyway, but first wanted to try a half year course of one or other of these GnRH group of meds, however what I have read already about these drugs, not just Lupron is horrifying it is still allowed and still being feed to unsuspecting women with a promise that it will stop bleeding etc, instead making people worse or end up with fibromyalgia too, goodness knows what effects it will cause on a very badly affected fibromyalgia survivor then! Well They will not be getting me on any form of it, jab or nasal spray. I don't have endo either, so they tell me, so whats he treating then, as this drug type seems to be for those with endo or fibroids (oh no don't think he got fibroids and fibromyalgia mixed up!! owwurrr!!!!!
Us women seem to get the raw end of the deal, when we complain about side effects or problems with a drug, its put down to the condition(s) we are suffering, or if they have yet to dx us correctly they tell us we must be making it up in our heads.
Sad so many of you have had to suffer or know of someone that's suffering the effects, but if this petition and your stories helps more women to say no to the drug type, then its not all in vain. but you've helped saved me from accepting it so thanks and hope the petition gets heard big time to stop more women going though your pains caused by this drug.
I AM A VICTIM OF THIS HORRID DRUG. I AM HAVING MY 4TH SURGERY SINCE TAKING THIS DRUG. I WAS PUT ON A 7 MONTH COURSE ENDING IN JAN. OF 1995. THE MEDICATION WAS SUPPOSE TO PUT ME INTO A TEMPORY MENAPAUSE INSTEAD I HEMMORAHGED. I ALSO HAVE NERVE DAMAGE FROM ONE OF INJECTION SITES IN MY ABDOMEN. I HAVE NEVER RECOVERED FROM WHAT THIS MEDICATION HAS DONE TO ME.
I HOPE THIS PETITION IS THE 1ST STEP IN BANDING THIS MEDICATION. I HOPE WHEN THIS DRUG IS BAND IT DOES NOT REIMURGE UNDER ANOTHER NAME AS MANY OTHER BAND DRUGS.
HOW MANY WOMAN HAVE TO SUFFER BEFORE SOMETHING IS DONE TO STOP THE USE OF LUPRON/ENANTONE AND KEEP THIS DRUG FROM REIMERGENCE UNDER ANOTHER NAME AS HAS BEEN DONE BEFORE FOR THIS SO THE DRUG ????????
MY BESTFRIEND IS STILL SUFFERING FROM THIS MEDICATION AND THE LAST DOSE SHE RECEIVED WAS IN JAN. 1995. SHE WAS GIVEN THE HIGHEST DOSING FOR 7 MONTHS. SHE IS HAVING HER 3RD FRMINE SURGERY ON EMERGENCY THIS MONTH. I WOULD LIKE TO SEE THIS DRUG REMOVED AND DESTROYED BEFORE ANTHOER WOMEN HAS TO SUFFER FROM ITS EFFECTS. THIS MEDICINE WAS USED TO CONTROL UNCONTRILED BLEEDING AND MADE HER HEMMORAGE INSTEAD. PLEASE HEAR ALL OUR SCREAMS VIA THIS PETITION.
As a support group leader I have met and spoken with hundreds of endometriosis sufferers. It is my opinion that Lupron is not in the least way effective against endometriosis. Many of the women I speak with have severe memory loss that is permanent and very obvious in normal social interactions. I have yet to meet or hear about a woman with endo who took Lupron and then had no more symptoms of endo or even someone who feels Lupron vastly improved their endo symtoms. Within the endo community Lupron is generally considered to be a temporary \
I was injected with this poison 2x. The last set was in 1999, for 6 mos, and after the 3rd shot, I started getting kidney stones, and they haven\'t stopped since, usually montly, as well as the infections. My periods didn\'t stop, but were 10 days long, and my pain that was the reason for getting the shots, pain in my right side, which I still have, was pushed to the side by my GYN, blamed on endo. My health as continued to go downhill ever since, but no one can figure out why, or what\'s wrong with me. I had a hyst in 2000. There\'s not enough room to put all the things that are wrong with me, but I also have fibro, my immune system seems to be shot, depression, severe bone pain, headaches, just to name a few.If it wasn\'t for my family and friends, I wouldn\'t still be on this earth suffering in the daily pain and fatigue I have. The guilt of what I put them through, by getting what I thought was to be a simple shot to stop my endo from growing, has turned into almost a decade of just trying to stay alive each day. Luckily I have an awesome PCP who is helping me try to figure this out, as well as trying to keep me as comfortable as possible. I think a letter should be sent to everyone that has been injected/infected with this poison.
I have seen the horrible effects this drug has had on my daughters health. Every year that goes by another health issue arises. I am 100 percent convinced that her ill health is due to the Lupron shots she received. It has only been recently that any of her Doctors were willing to listen to her appeal to look further into the this drug and the side effcts.They would blow her off and deny any possibility of that being the case.
I support this petition because after a trial of lupron injections for endometriosis, I immediately developed my first symptoms of fibromyalgial -- contracted muscles in neck, shoulders and back that have never released to this day. That was 20 years ago. Over the year the multiple symptoms of FMS occurred and I had to leave my position as a tenured associate professor. Once an award-winning scholar and gifted teacher, I now spend my days housebound trying to keep my symptoms under control.
This drug should be removed from the market and the drs should be given more info about the long term side effects so that they can treat patients suffering from the side effects.
I believe that what we are going threw is directly related Lupron a chemo therapy, some how to the pituitary and adrenal gland being shut down as a result. We have damage to the normal brain functions.
I was never told about any side effects by my doctor, I\'ve got only one shot and just praying to God that I don\'t get anything worst than I\'m experiencing now
I was given Lupron for prostrate cancer. Since I have experienced vision problems, vertigo,memory loss, muscle pain, depression and low energy. Great stuff-NOT. This drug is poisonous and needs serious review. There are no long term studies except by the company which we know the results will be.
Lupron is a big money maker for Tap.My daughter did not have Endo or a uterus. She has been very very sick after 2 injections 4 years ago.The doctor made the money and my daughter lost everything including her way of life.
60-year-old male being treated for enlarged prostate and cancer 18 mos. with 3-month injections Lupron. MD did not even mention possibility of side effects which remain minor but concering: elevated blood glucose, slight anemia, apparent aggravation of pre-existing conditions including weakness in forearms and hands.
There is in fact a real problem with those products. It is very important for the humanity and the people's health that the situation with these products is clarified and the use of them is restricted, that people are completely informed about the risks !
My obgyn said to try lupron depot,also he said mabey i would lose a small percent of bone dentecy, dismissed as nothing! the real truth is this is a vicious
Decapeptyl est un poison! Apres plusieurs annees, je souffre toujours de douleurs terribles dans les bras et les jambes, pertes de memoire, fatigue, baisse de la vision, vertiges...
I would not recommend this drug to my worst enemy. I am horrified reading these entries and possibly having to live the rest of my life with these side effects. I still have effects and they shoud've stopped over month ago. I was searching for why and I found this. The benefits did not outweigh the side effects.
I have heard almost nothing but horror stories abut this drug. I have heard from only two women it helped, as opposed to the hundreds I have heard from that had horrible, long lasting damage from it.Please look into this drug further.
Lupron stole my health from me. I tried to sue Pro Se in Orange County, CA and couldn't get a lawyer to help me before my time ran out. TAP harrassed me non-stop about the lawsuit. It was hell. I hate TAP. I hope something will come of this. All the best to you. Write me anytime. ~Louise Email: LL@socal.rr.com
I got two shots and with all the side effects I feel like I'm going to die any day now. Something has to be done. Health is more important it's not all about the money all the time.
Je prends du Decapepetyl depuis 8 mois et les effets secondaires sont très invalidants.J'ai l'impression d'avoir 70 ans (j'en ai 42 !!).Ce médicament, c'est du poison !!
I support this petition. I had 3 injections of depo lupron for endometriosis. It did not help the endometriosis, AND it ruined my life! My doctor gave me no information on possible side effects and promised it would alleviate my endometriosis pain -- HAH. Leaving that doctor and getting away from toxic hormonal treatments alleviated the endo pain, but I am still left with the terrible lupron side effects over ten years later.
Enantone, Lupron, Zoladex, Decapeptyl, Synarel et tous les autres sont des poisons aux effets secondaires dévastat eurs. L'industrie pharmaceutique nous tue à petit feu pour se remplir les poches! Il faut interdire ces substances dans l'endométriose , les fibromes et d'autres maladies sans risque vital. LUPRON IS POISONING PEOPLE! TAKE IT OFF THE MARKET!
This drug has made me feel so bad that I quit taking it, After two months since my last treatment I still suffer from hot flashes beyound anything I can stand.
Lupron for fertility was given with success, but after nursing I rapidly aged with DHEA below an 80yo mulitple very rapid aging side effects. Please get info out to US also Thank you
Les effets secondaires d'Enantone et Decapeptyl peuvent etre invalidants et irreversibles. Et tout ca pour un benefice qui n'a pas ete prouve. Ne rien faire serait iresponsable! L'EMEA et l'Afssaps doivent informer le public et faire des etudes sur la toxicite de ces remedes qui sont pires que le mal...
je suis atteinte d 'endométriose opérée d'une colectomie je suis énantone et suis trés trés fatiquée et je commence a avoir trés mal dans les articulations et dans les muscles
