Cure for PVNS (Pigmented Villonodular Synovitis)
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Started: October 11, 2005, 12:59:10 am
Target: Government
Category: Health
Supporters:

269
Goal:

100,000
Goal Progress:

1% Complete
Status

Active
Pigmented villonodular synovitis (PVNS) is a rare proliferative process involving synovial membranes. It has a variable course, and while usually benign, may be destructive, resulting in major symptoms and loss of function leading to amputation. Optimum treatment is not always clear, and little information exists with respect to the role of radiotherapy. The purpose was to review our experience with radiotherapy in cases at high risk for recurrence with functional loss including instances where amputation was the sole alternative for symptomatic disease.

We need to find a cure but cry cry not enough money because not enough people have it. This needs to be addressed and cured doctors are starting not to treat patients because there is nothing they can do so lets go get this over with we've been trying to find a cure for cancer and aids for how long. Lets spend a little time on this as well.

More info on PVNS
http://search.msn.com/results.aspx?q=what+is++PVNS&FORM=QBRE




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Discussion Forum
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Created 1 week ago. 1 comments
Last post by anne glastonbury
Posted 1 week ago


Signatures
MIchelle Salisbury said 1 day ago (unverified)
I support this petition.
#269

erin harrington said 2 days ago (unverified)
I support this petition.
#268

anne r said 6 days ago (unverified)
I support this petition.
#267

James MURRAY said 6 days ago (unverified)
I support this petition.
#266

Rebecca Ellis said 2 weeks ago (verified)
I support this petition.
#265

Tammy soderberg said 2 weeks ago (unverified)
I support this petition.
#264

Dawn Schiefer said 2 weeks ago (unverified)
I support this petition.
#263

mark farmer said 2 weeks ago (unverified)
I support this petition.
#262

Tracey Snyder said 2 weeks ago (verified)
I support this petition.
#261

Kelly O\'Connor said 2 weeks ago (verified)
I support this petition.
#260

debbie seaton said 2 weeks ago (unverified)
I support this petition.
#259

Marlene Lentry said 2 weeks ago (unverified)
I support this petition.
#258

kris scheid said 3 weeks ago (verified)
I support this petition. i have had 4 surgeries on my right knee to remove diffuse pvns and still no cure
#257

amanda cooper said 3 weeks ago (verified)
I support this petition.
#256

Simon H441 said 3 weeks ago (verified)
I support this petition.
#255

Natalie Deguara said 3 weeks ago (unverified)
I support this petition. I have just been diagnosed with PVNS in my left ankle/foot after 3 years of pain and inablility to exercise (I used to run) or sometimes even bear weight on it. I am currently being referred to a tumour specialist and have to decide then whether to have surgery etc. I am not keen to have radiotherapy. My ankle and foot is always tender and alot of the time it is painful with some episodes that are terrible. A few weeks ago I had pins and needles under my foot that lasted a week and were quite painful. My cartiledge is irreparably worn away and I have many bone cysts. Please research this condition, although benign it is debilitating and reoccurring, research is needed!
#254

Laura Spencer said 3 weeks ago (unverified)
I support this petition.
#253

Natalie Smith said 3 weeks ago (unverified)
I support this petition.
#252

Tiara Artis said 10/21/09, 12:05 pm (unverified)
I support this petition.
#251

ashley howard said 10/19/09, 7:32 pm (unverified)
I support this Petition.
#250