Advocure has been lobbying to have the NF Consor...








Author: Joyce Herndon
Started: June 19, 2006, 1:44:13 am
Target: nfrp
Category: Health
Supporters:

989
Goal:

500
Goal Progress:

100% Complete
Status

Goal Met!
Please sign


A petition letter to be sent to the NFRP to get NF2 included in this new award mechanism, in which all we are asking you to do is sign your name, number of surgeries, and losses of function.

If you have family members or significant others who are not on crew, and also wish to support this petition, please add their name and address as well ( obviously with no surgeries/tumor list, if they do not have NF2). We believe that our non –NF2 family/friends also should have a voice, since the pain and anguish of how NF2 affects our lives is experienced by all those around us.


From the Advocure Team.
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Signatures
Ken Tuma said 10/29/06, 3:59 am (unverified)
There needs to be a cure to this. In memory of my wife Ginger M. Jackson-Tuma deceased July 26, 1999
#989

Victoria Mathews said 10/12/06, 11:45 pm (unverified)
I support this petition.
#988

Roberto daSilva-Ribeiro said 09/09/06, 9:17 pm (unverified)
I support this petition.
#987

Marsha Watts said 08/25/06, 2:51 am (unverified)
I support this petition.
#986

Kris said 08/22/06, 8:30 am (unverified)
#985

Misty White said 08/20/06, 7:13 am (unverified)
I support this petition.
#984

Tamara White said 08/19/06, 10:44 pm (unverified)
I support this petition.
#983

Betty White said 08/19/06, 1:44 pm (unverified)
I support this petition.
#982

Sondra Wiedenfeld said 08/19/06, 3:34 am (unverified)
I support this petition.
#981

Tanara Watson said 08/18/06, 6:46 pm (unverified)
I support this petition.
#980

Sheila Heal said 08/18/06, 5:44 am (unverified)
...ensuring the rapid translation of NF2-focused research into targeted therapy for NF2 sufferers, such as my beautiful teenage daughter.
#979

Jackson Farrow said 08/12/06, 2:41 pm (unverified)
I support this petition.
#978

Dawn Robert said 08/11/06, 3:51 am (unverified)
I support this petition
#977

fukuda said 08/10/06, 7:30 am (unverified)
I don't want to lose the function of the body any more. But I feel more unpleasant that NF2 is assumed to be an incarnation of the tragedy. There are people who have lived with nf2 for a long long time. It wishes the people not to be casted away from the administration and the medical treatment. I just need a fair field for life.
#976

Jeff Barger said 08/07/06, 9:09 pm (unverified)
I support this petition.
#975

Anthula Ralph said 08/07/06, 5:36 pm (unverified)
I support this petition.
#974

Steve Sailah said 08/07/06, 2:08 pm (unverified)
I support this petition
#973

Carolyn Biggs said 08/07/06, 2:06 pm (unverified)
I support this petition as I am a friend of someone whose son has NF2 and it is very sad to see the impact this illness has on the whole family
#972

Jess Hoylman said 08/06/06, 1:24 pm (unverified)
I support this petition.
#971

Calvin Roberts said 08/04/06, 4:38 am (unverified)
I support this petition.
#970