Phenylketonuria
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Author: Jamie Johns
Started: April 18, 2006, 7:49:12 pm
Target: FDA
Category: Health
Supporters:

2,079
Goal:

2,000
Goal Progress:

100% Complete
Status

Goal Met!
I am requesting to the FDA that Phenylalanine information needs to be printed onto the Nutrition Facts on all packaged foods. The reason I feel the necessity for this information on food packages is, my son was diagnosed with Phenylketonuria (PKU) which has made me acutely aware of the difficulties encountered by all PKU patients and parents of children diagnosed. Like most people I had no idea what the disease even was. The body produces amounts of phenylalanine (phe), which is amino-acid found in protein. With both the body producing phe and the intake of protein/phe is too much for their bodies. Which can result in a build-up of phe deposits causing seizures, learning disabilities and mental retardation and all are irreversible. A PKU patient’s life is extremely difficult to manage and if the information was provided in the food’s package this information would help to alleviate some of the difficulty involved with managing the diet.




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Signatures
Sabine Hal said 12/25/08, 7:57 am (verified)
I support this petition.
#2079

James062 Nell said 09/01/08, 2:31 pm (verified)
I support this petition.We have the right to know whats in our food .
#2078

Kathy Boling said 08/18/08, 4:25 am (verified)
I support this petition.
#2077

Aaron McCulley said 07/08/08, 11:15 am (verified)
I support this petition.
#2076

Aaron McCulley said 07/08/08, 11:01 am (verified)
I support this petition.
#2075

Sussette said 03/04/08, 1:28 pm (verified)
Definitely would help make life easier for people and children with PKU!
#2074

Jessamyn said 01/15/08, 8:46 pm (verified)
I support this petition.
#2073

Ma³gorzata Nowicka said 01/08/08, 4:17 am (verified)
I support this petition.
#2072

munzer abdulhak said 12/09/07, 11:59 am (verified)
I support this petition.
#2071

rahaf kanawati said 11/30/07, 1:45 pm (verified)
I support this petition.
#2070

Amanda_Cosburn said 10/18/07, 2:30 pm (verified)
i strongly support this and belive that it will do alot of good!21ys old CPKU victoria BC Cananda ,
#2069

Marta said 10/04/07, 10:01 am (verified)
I support this petition.
#2068

laryssa callan said 07/31/07, 12:48 am (verified)
I support this petition.
#2067

James Heater said 07/22/07, 7:22 pm (verified)
I support this petition.
#2066

Kathryn Scherer said 06/05/07, 12:05 pm (verified)
This would make diet management much easier.
#2065

Brad Nagel said 06/04/07, 4:44 am (verified)
I will forwad this on to the Western New York PKU Association, as I am on the board of directors.
#2064

Ronnie Simeone said 05/27/07, 5:58 am (verified)
Please help us.
#2063

Hailey said 05/26/07, 1:21 pm (verified)
I support this petition.
#2062

Michael said 05/26/07, 1:08 pm (verified)
I support this petition.
#2061

Rebekah said 05/26/07, 11:45 am (verified)
I support this petition.
#2060